External Help
There are lots of places that you can go online for information on arthritis, lupus and myositis, but we have collected the ones we think are really good.
"Some information can be misleading so make sure you use reliable and trusted web sites"
Corinne, Research Fellow
Arthurs Place
The first online magazine and social network specifically for young people with arthritis which includes great Arthritis facts, Life Hacks and Community pages!
Arthritis Australia
An informative guide from Arthritis Australia for young adults with arthritis.
Children's Chronic Arthritis Association
CCAA is a UK based JIA charity run by a group of people who, through personal experiences, have a passionate interest in helping support children with Juvenile Idiopathic Arthritis (JIA) and their families. The children and families are always at the heart of our work. Everyone who is involved in the charity has been affected by JIA in one way or another, either as parents, siblings or young people with JIA themselves.
Cure JM
Cure JM is a charity with the mission to find a cure and better treatments for juvenile myositis and improve the lives of families affected by JM
JIA NRAS
NRAS- JIA For all our information on Juvenile idiopathic arthritis, what it is, how it’s managed and living with the condition.
Juvenile Arthritis Research
Information booklet for children with JIA and their families, including a section of information for schools. Freely available from the website.
Lupus UK
Provides links to a young persons lupus support group (ages 16-24 years) held in London usually every 2 months.The support group is a positive group that shares different experiences of young people suffering with lupus. It is also a group that offers advice for coping with living with lupus such as support in employment, school or university. For further details please email: paul@lupusuk.org.uk
Myositis UK
Myositis UK is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment
NHS website
The UK’s NHS website providing information on JIA with a brief summary of the different subytypes.
Scleroderma Foundation
Scleroderma Foundation is a charity that aims to support patients and families with scleroderma, as well as educate and promote public awareness through patient and health professional seminars and campaigns. The Foundation also supports research to improve treatment and care for scleroderma and related diseases
The LUNA Project
The LUNA Project is a charity that seeks to support and raise awareness of young people with chronic illnesses, disabilities, and long-term health conditions. Their work centres around making these conversations possible and empowering young people to talk to their peers about their health conditions.
Versus Arthritis
o Read advice and information for young people who have arthritis and their families, including how to ease your symptoms and tell friends about your condition.
o If you would like to talk to someone, you can call our free helpline on 0800 5200 520 (Monday to Friday, 9am to 8pm)
o If you’re over 18, you can join our young people’s forum on our online community to chat to others like you:
o Check out our Arthritis Tracker app to track your symptoms from pain, fatigue and emotional wellbeing. Download for free iPhone on the Apple App Store and for Android on Google Play.
o Stay in touch and follow us on Twitter, Facebook and Instagram.
56 years, 9 months ago