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Our 5th Adolescent Rheumatology Symposium is now avaliable online please follow the below links;

Session 1: Role of interferon in autoimmune diseases: Intro from Professor David Isenberg and talk from Professor Hector Chinoy

Session 2: COVID 19. Talk from Dr Kate Webb

Session 3: Patient perspective: mental health and coping with disease – led by Professionals.
Talks from Dr Polly Livermore, Dr Janet McDonagh & Eleanor Edgar (young person)

Session 4: Poster presentations.
See pdf for full programme for list of speakers

Session 5: Debate and closing remarks. Debate: This house believes that Adolescent Rheumatology should be a standalone specialty.
Closing remarks by Professor Lucy Wedderburn

https://mediacentral.ucl.ac.uk/Play/56341

https://mediacentral.ucl.ac.uk/Play/56344

https://mediacentral.ucl.ac.uk/Play/56345

https://mediacentral.ucl.ac.uk/Play/56390

https://mediacentral.ucl.ac.uk/Play/56357

 

2nd Adolescent Rheumatology Symposium - 28th January 2016!

Our Symposium was attended by 170 people and sessions included talks on imaging, management of rheumatic disease in young people, and young person involvement in research. Our Young Person Representatives, Cat and Phoebe gave emotive powerful speeches on being young people with a rheumatic disease. They spoke about the difficulties and realities of everyday life, thoughts on research, how they were inspired to study medicine and become representatives for other young people. They also spoke about how involving patients in research development not only improves quality of research conducted but also empowers young people to ensure their voice is heard and meaningful differences made.

Royal visit to the Centre - 12th February 2015!

Her Royal Highness, The Duchess of Cornwall, today visited teenagers with arthritis at the Centre in her capacity as Patron of the charity Arthritis Research UK. During the visit, The Duchess of Cornwall was shown immune cells in a microscope as part of a project defining how puberty and stress can affect the immune system and MRI scans which show how the progress of arthritis in teenagers is different to that of adults. She also had the opportunity to meet young people who have worked with researchers to develop support and information services for other young people with arthritis. For more information: http://www.arthritisresearchuk.org/news/press-releases/2015/february/duchess-of-cornwall-visit.aspx 

Adolescent Rheumatology Lab Opened - 4th December 2014!

We are pleased to announce that the first laboratory dedicated to studying diseases related to arthritis and other rheumatic problems in adolescents and young adults was formally opened at UCL  by Kiss FM Radio DJ Melvin Odoom and Arthritis Care’s Young Person’s Supporter Kelly-Anne Lyons, with some of our young patients!

The Barbara Ansell National Network for Adolescent and young adult Rheumatology (BANNAR)

BANNAR is a group of interested and committed professionals across the UK working together to develop and oversee a national body of work relevant to adolescent and young adult rheumatology. The BANNAR website is a source of information for researchers and health professionals about what’s going on nationally and the current relevant research projects with young people. BANNAR is very keen to engage with anybody interested in driving forward research supporting young people so if you know of any doctors or researchers you are familiar with and that have helped you, tell them to get in touch with BANNAR for more support and potentially funding for research. Please contact Sarah Yorke for further information (s.yorke@versusarthritis.org).

YourRheum

One of BANNAR’s projects is the Young People’s Opinions Underpinning Research (YOURR) project, which aims to get young people and their families involved. In YourRheum, young people between the ages of 11-24 across the UK who are diagnosed with a rheumatic condition advise and provide input to shape the current adolescent and young adult rheumatology research. If you are interested in joining this group, feel free to contact Laura Lunt on: laura.lunt@manchester.ac.uk.

British Society for Rheumatology

A leading UK specialist medical society for rheumatology and musculosketal care professionals. The BSR brings together expertise from across the rheumatology profession harnessing a wide variety of experience and skills to ensure they support members to the very best of their combined ability

Biomedical Research Centre: Great Ormond Street Hospital NHS Trusts.

The NIHR Great Ormond Street Hospital Biomedical Research Centre (BRC) supports medical research for children and young people at Great Ormond Street Hospital (GOSH) and the UCL Institute of Child Health (ICH). The funding enables basic scientific discoveries made in laboratories to be translated into ‘first in man’ or ‘first in child’ clinical studies. The research aims to accelerate discoveries into the basis of childhood rare diseases and to develop new techniques and treatments. The Centre works closely with GOSH BRC in undertaking research related to Adolescent Rheumatology

Biomedical Research Centre: University College London Hospital's NHS Trust

The UCLH Biomedical Research Centre (BRC) is a partnership between University College London Hospitals NHS Foundation Trust (UCLH) and UCL (University College London). UCLH is one of the largest NHS Trusts in the United Kingdom and UCL is one of the leading biomedical research universities. By working together they have become leaders in translating fundamental biomedical research into clinical research that benefits patients. The Centre works closely with the UCLH BRC in undertaking research related to Adolescent Rheumatology

The CLUSTER Consortium

The CLUSTER consortium brings together UK leaders in paediatric and adolescent rheumatology and ophthalmology to focus on JIA arthritis and JIA-uveitis in children and young people. By working together, they hope to better understand how the condition affects young people, how we can predict the best treatment for each young person, and in doing so, improve treatment options in future.

Versus Arthritis

Provides information for young people with rheumatological conditions as well as info for parents and teachers.

Great Ormond Street Hospital Children's Charity

Great Ormond Street Hospital Children’s Charity Supports the hospital and its patients by funding in areas including support for patients and families, research into children’s health, life saving medical equipment, and rebuilding and refurbishment.

Juvenile Dermatomyositis Research Group

A website hosting the juvenile dermatomyositis research group. Provides GOOD information for patients with JDM and parents with FAQs. Also provides the opportunity for patients / parents to inform the research agenda for JDM.

Lupus UK

LUPUS UK is a charity that provides good information for young people with SLE

Juvenile Dermomyositis at NRAS

For all our information on Juvenile idiopathic arthritis, what it is, how it’s managed and living with the condition.

Children's Chronic Arthritis Association
CCAA

CCAA is a UK based JIA charity run by a group of people who, through personal experiences, have a passionate interest in helping support children with Juvenile Idiopathic Arthritis (JIA) and their families. The children and families are always at the heart of our work. Everyone who is involved in the charity has been affected by JIA in one way or another, either as parents, siblings or young people with JIA themselves.

Myositis UK

Myositis UK is a small national charity providing information to those affected by myositis and funding research to improve diagnosis and treatment

Scleroderma Foundation

Scleroderma Foundation is a charity that aims to support patients and families with scleroderma, as well as educate and promote public awareness through patient and health professional seminars and campaigns. The Foundation also supports research to improve treatment and care for scleroderma and related diseases

Cure JM

Cure JM is a charity with the mission to find a cure and better treatments for juvenile myositis and improve the lives of families affected by JM

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